Rare and Real

Rare & Real is a bold, unfiltered podcast where rare disease meets real life — and nothing’s off the table. Hosted by Nate Milam II and Carter Hemion, queer rare disease advocates, storytellers, and health equity champions, this show is built for the community and by the community. Whether you’re a patient, caregiver, provider, ally, or just trying to understand what it means to survive and show up at the margins — you’ll find yourself here. We talk about it all: sex and dating, mental health, grief, growing up rare, medical gaslighting, joy, transition care, and everything in between.